Fragile X Awareness for Central Texas

 

Welcome to Fragile X Awareness for Central Texas (F.A.C.T).  We are strong supporters of FRAXA, a non-profit organization that supports research in finding a cure for Fragile X Syndrome.

We are five sisters that are all carriers of Fragile X and are devoted to increasing awareness in the Central Texas area as well as raising funds to aid in research.
Thank you HLC!!

We wanted to extend a great big thanks to the Healthcare Leadership Coalition from Texas State University in San Marcos.  They held an Easter Egg Hunt to help raise awareness of Fragile X Syndrome in the community.  There were many families that came out and learned about the challenges that FX families face.  Thanks for all of your hard work and for helping to get our message out!!

Update on the Doris Buffett Challenge!

Thank you!!! FRAXA Donors raised more than $1.5 million which was matched by Doris Buffett's Sunshine Lady Foundation In the Spring of 2007, Doris Buffett, president of the Sunshine Lady Foundation, challenged FRAXA to raise $500,000 in new funds by November 1 which she'd match. On August 28th, FRAXA met the challenge! Doris told us to keep going. Until November 1, the sky would be the limit. FRAXA families and friends tripled the goal. The grand total of new donations received was $1,424,562, with an additional $98,755 in pledges payable by March 1st, for a total of $1,523,317! Together with Ms. Buffett's initial $500,000 gift, FRAXA received over $3.5 million in new money -- all for research aimed at curing or treating Fragile X. This means new clinical trials, new research, new determination to reach for a cure.

Thanks so very much to all of you who helped make this happen. More than 2600 people donated toward the Challenge - it is a true grass-roots community success. The BBQs, the kart races, the strongman challenge, the golf tournaments, the comedy nights, the galas, the motorcycle rides, as well as individual donations, brought us way, way over the top! 

All of this information was obtained from the FRAXA website.  To find out how the Fragile X families made this happen, visit www.fraxa.org for more information.

© 2007 F.A.C.T.

It's a matter of F.A.C.T.!